Why I came out as disabled.

My journey to coming out as disabled started in 2007 when after a long struggle with severe symptoms of tiredness, weight gain, confusion and memory loss; I was diagnosed with hypothyroidism. As many of you will know, tiredness when connected to illness canbea horrifically traumatic experience. It's not like yawning and deciding to sleep, it's like fighting sleep off day after day. It's sleeping for twelve hours, waking up and feeling exhausted again before you've brushed your teeth. Everything is greyer, further away, tiredness is like a blubber that separates you from the fun, from living.

When framed like that, it makes me wonder why anyone would ever put off seeking medical help for a year. But we all do. Why would someone allow themselves to be lost within a condition? Because that's what happened. I lost most of my personality inside those symptoms and the culmination of how I dealt with them, and if I'm perfectly honest, I'm not entirely sure I got all of it back. Who can crack jokes when they can't remember the end of their sentence? Who can smile when every interaction is such an effort that you begin to resent those who speak to you?

It took a lot of thinking to understand why I subjected myself to this, but I reached a conclusion- internalised disablism.

See for the most part of my life I grew up in a house hold with my Mum, who supported both of us. My Mum has worked my entire life and I can't remember her having a day off, for illness,beforeI was sixteen. She couldn't get ill because her being ill meant being short on the rent, me being ill meant a baby sitter's billwecouldn't afford; ill meant failure. Illness was something to be powered through.

This survival technique coupled with disablism ingrained in ourculture (e.g. people with physical disabilities used as the butt of jokes, people who experience mental illness being represented as murderers) lead me to tell myself repeatedly that I couldn't be ill, because that would mean failing my A Levels.

So, the anxiety & depression over the prospect of failure (and the misery caused by the condition) lead me to find other ways to propel myself through my course and my social lifewithout 'failing'. Mainly narcotics & alcohol (and dangerous relationships to acquirethem).I was living with eight other young people in supported accommodation so there was never peace and quiet. I was out the house for twelve hours a day attending a college with the most unsupportive 'support staff' imaginable. I was using drugs to see me through the weekend and still managing to pass my course. And that was going really well until I started having to hide fainting fits, experiencing hallucinations and paranoia and was admitted to hospital with what was a series of 'accidental overdoses'. The culmination of this behaviour was a mental breakdown and I don't think I have the adjectives to describe that experience to you.

The last time I had to go to hospital for symptoms caused by drugs I finally saw myself for what I was; the same old girl but without the light, without anything but bags under my eyes, a hospital gown and nowhere near enough money to get home. I thought to myself 'I could die right now'. And because that scared me, I knew there was a spark of me left: a spark of me worth fighting to keep.

I'm still fighting for that spark today, I suppose. Everyday is a fight: Disablist external and internal voices telling me that being ill is failing vs. the truth.

To explain what that truth is I'll have to talk about another diagnosis. After being diagnosed with hypothyroidism, depression, anxiety, and seeking help for my addiction, I stilldidn't self- defineasdisabled.For me to claim that term, we have to talk about 2013. In my final year of university, I was seeking medical help for posterior uveitis and macular edema. I was losing vision rapidly and for the first time in five years I felt I was losing the battle with internalised disablism. It was then that I realised that one person isn't enough to fight disablism. Not even close. We each have our limits and our abilities and I wrote a statement about mine in relation to our Student union elections. This is probably the first time I recognised my limits as a disabled person.

Disability to me is not a special criterion, a measurement of ability, or a term reserved for those who are ill 'enough'. Because the truth is that there is no illness small enough to ignore and no role so important that health can be side-lined. Disability is the absence of abled privilege. I don't have the privilege of being able to control my body weight as others do, of being able to see properly, of being able to write and speak without mistakes, of being able to effectively usemy working memory, of being able to use substances recreationally,ofnotbeing depressed and anxious. The expectation thata person cando allof these things is socially constructed and maintained, and because of this, disability is a physical and political identity.

In the movement and activism against disablism and able normativity I found that self-care and peer support are essential. NUS Disabled Students Officer, Hannah Paterson, offered me support and understanding following me coming out about my condition, and I think that was the first time in a long time I wasn't scared to be seen as weak, because Hannah and other activists find strength in admittinglimits. What followed helped me to do the same. Other disabled activists rallied round to help with the things my disabilities prevented mefrom doing and I think the power of that network is a huge factor in me being here today, relatively unscathed. I need and deserve a network of people who share my rage, fight and principles of self-care.

Before disability I was just someone who couldn't see the PowerPoint, someone too scared to leave the house sometimes, someone whose life was a process of rebuilding, relapsing and ignoring. Before disability I was acting out of fear of 'failing' socially and academically but I was failing myself. Before disability I was losing myself, I was killing myself.

And now that I have claimed the word disabled with all its power, history and support?

Now I know that strength means asking for help.

Now I'm proud to be disabled.

5 problems with sex positivity

Although I am a sex positive activist, I don't believe subscribing to any tradition, political perspective or community, uncritically, is a good idea. The problems outlined below are things I've encountered in spaces that aren't explicitly feminist. But they are important, and they do matter.

1. Men dominating conversations on women's sexuality and bodies
I've found that in a spaces that aren't feminist the oppressive power dynamics found in any other place are reitterated and validated in discussions. The discussion is usually male centered, binarist, cissexist, heteronormative, etc. Some men use sex positivity and the discourse of 'preference' as a cloak to excuse their patriarchal generalisations. E.g. 'body hair (on women) is revolting'. Sex positivity should be about challenging patriarchal notions and normative, oppressive ideas about sexuality, and it saddens me that some men are accessing sex positive spaces to do the opposite.

Benjamin Rush, Carl Von Linné, Julien Offray de la Mettrie, Sylvester Graham, Richard Von Kraft-Ebing, John H Kellog, Sigmund Freud, Alfred Kinsey, Claudius Galerius, Samuel Tissoflt- the discourse on human sexuality has been dictated by white men, some making progressive arguments, some scientific and some oppressive, but all men. Most people in the world are not white men. And our sex positive spaces should endevour to not silence those who aren't, otherwise it's just the same old shit, under a different name.

2. Shallow analysis of the roots of sex negativity
Sex is political, just like anything else. Sexual behaviour has been policed, villianised, or encouraged thoughout history depending on the political climate. There's definitely positives in addressing the symptom (the experience of sexual shame and repression) but the discussuon of the cause is important for true progression. Sex positivity in relation to capitalism, sex positivity in relation to disability, to patriarchy, to the nuclear family? These  dialogues are missing. Sex positivity cannot simply be a tool for self validation alone, but for ensuring we can break the the cycle of sexual repression.

3. Pressumptions
I believe a sex positive space should be one in which people aren't subjected to others making tired presumptions about gender, sexuality, or experience of sexual desire. When writing about sex positivity leads to relative strangers (all men) contacting me pressuming that I want to have sex with them, this reinforces the idea that a woman discussing the politics of sex is a 'cert'. No, I don't want a photograph of your sex organs. Thank you. No, talking about sex doesn't automatically mean I experience a high sex drive, or that I want to answer questions about my sexual behaviour. Thank you. No, talking about sex doesn't mean that I'm heterosexual. This dialogue is not another tool to service male pleasure, it's a tool to challenge the assumptions, not reinforce them.

4. Slighlty missing the point
Sex positivity is not about uncritically claiming that all sex is great.
a)Sex is not always positive
b)and it's not essential for everyone.
Many people have a strained relationship with sex, and their own body, they may have sexual triggers or have survived sexual abuse or rape. The sex positive movement cannot make progression if we simply plaster over the fact that sex can be a negative experience and a tool of oppression. We are failing at communicating the true purpose of sex positivity if we exclude people with sexual triggers. It's not about saying 'woohoo, sex is always fabulous' it's about recognising that human sexuality is diverse, complicated and often an emotive topic. It's about saying that there is no 'wrong' way for a person to express their sexuality, or asexuality. We shouldn't be silencing survivors of sexual abuse, we should be shaming institutions that normalise it, we should be discussing consent.

People may choose not to engage in erotic behaviour and still lead rich, fulfilling lives. Sex positivity should not be about interveining to educate people who choose not to have sex, to tell them what they're missing. Sex positivity should not be about forcing people to discuss their own sexual behaviour if they don't want to, or pressuming that those who don't are victims of sexual shame.

5. Body negativity
I cannot count the number of times I've seen or partaken in discussions that transcend into body negativity. Why? Because although it's essential that sex positivity and body positivity are linked, someone forgot to put that on the group email, or the general memo. Fatshaming, thinshaming, disability shaming, normative beauty standards, body policing= not sex positive. Body positivity absolutely has to be a part of this movement because if not, then we're saying 'you only deserve sex positivity if you fit these narrow critera'. Expressions of sexuality are not hierarchical, hopefully most people realise that penetrative sex is not the Golden Chalice of erotic acts? Body types and appearences should also be discussed in a non-judgemental, non-heirarchical manner, too. Otherwise we are  shaming the tool used for the expression of human sexuality, and therefore we are encouraging sexual shame.

Conclusion? My sex positivity will be feminist, intersectional, self-critical, LGBTQ inclusive, disability positive, and radical, or it will be bullshit.

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Mary Lambert- marry me?!

So Mary Lambert is a singer and spoken word artist who has worked with some guy you might have heard of called Macklemore? She's not single. We've never met. And she's not going to marry me.

But today I read something written by her that made me want to ask her to. In fact, it made me want to stand on top of a big hill and throw glitter around. Mary Lambert is...well...pretty fucking amazing!

I think a lot about how the media and music industry never produce people 'like me' or never show people like the people I know. And I know I'm in a comfortable little bubble. Most of my friends define into multiple liberation groups and are intersectional feminists, socialists, anarchist or just have genuinely shit hot politics.

So when I see celebrities and musicians who think rape jokes are hilarious and being fat is a crime- it shocks me. But not as much as it should. Because we get used to the idea that things like body positivity, self care, and working against the stigma of mental health are things we have to do. Things we have to talk about and things musicians & celebrities are so detached from that we stopped reading magazines and watch MTV years ago.

That's what I did think. Now I saw Lambert's performance of I Know Girls a while ago and posted it on facebook. Basically, I forgot about it because I thought it was a fluke. But tonight I saw what Mary Lambert had written and I was blown away. I read about her life. All I could think was 'this sounds like someone I could have an excellent feminist rant with' (basically the yard stick by which I measure friendships).

So, old me, you were wrong. There are successful people out there that have brilliant politics. They didn't have to dillute themselves or disregard their values to get there.

I'm not saying it's a war won. I'm saying it's a battle I had chalked up as a loss...reopened?

Anyway, I'll leave you with the a quote from the woman I'm not going to marry. But who I'd quite like to rant with. And who happens to be spreading this message to millions of people.

When you shame another’s weight (be it thin or fat), when you claim to call out someone’s body size because you “care” about their health, it is not a beneficial statement in any sense of the word, and in actuality is far more harmful to any progress a person might have with relation to their health. What right do you have to talk about someone else’s body or health? You are hammering a distorted ideology that they are not normal, that they are not worthy, and convincing them that they are going to die early. The reason that there is a body positive movement is because we’re celebrating our bodies for the magic that they are and the beautiful things they are capable of.