Why I came out as disabled.

My journey to coming out as disabled started in 2007 when after a long struggle with severe symptoms of tiredness, weight gain, confusion and memory loss; I was diagnosed with hypothyroidism. As many of you will know, tiredness when connected to illness canbea horrifically traumatic experience. It's not like yawning and deciding to sleep, it's like fighting sleep off day after day. It's sleeping for twelve hours, waking up and feeling exhausted again before you've brushed your teeth. Everything is greyer, further away, tiredness is like a blubber that separates you from the fun, from living.

When framed like that, it makes me wonder why anyone would ever put off seeking medical help for a year. But we all do. Why would someone allow themselves to be lost within a condition? Because that's what happened. I lost most of my personality inside those symptoms and the culmination of how I dealt with them, and if I'm perfectly honest, I'm not entirely sure I got all of it back. Who can crack jokes when they can't remember the end of their sentence? Who can smile when every interaction is such an effort that you begin to resent those who speak to you?

It took a lot of thinking to understand why I subjected myself to this, but I reached a conclusion- internalised disablism.

See for the most part of my life I grew up in a house hold with my Mum, who supported both of us. My Mum has worked my entire life and I can't remember her having a day off, for illness,beforeI was sixteen. She couldn't get ill because her being ill meant being short on the rent, me being ill meant a baby sitter's billwecouldn't afford; ill meant failure. Illness was something to be powered through.

This survival technique coupled with disablism ingrained in ourculture (e.g. people with physical disabilities used as the butt of jokes, people who experience mental illness being represented as murderers) lead me to tell myself repeatedly that I couldn't be ill, because that would mean failing my A Levels.

So, the anxiety & depression over the prospect of failure (and the misery caused by the condition) lead me to find other ways to propel myself through my course and my social lifewithout 'failing'. Mainly narcotics & alcohol (and dangerous relationships to acquirethem).I was living with eight other young people in supported accommodation so there was never peace and quiet. I was out the house for twelve hours a day attending a college with the most unsupportive 'support staff' imaginable. I was using drugs to see me through the weekend and still managing to pass my course. And that was going really well until I started having to hide fainting fits, experiencing hallucinations and paranoia and was admitted to hospital with what was a series of 'accidental overdoses'. The culmination of this behaviour was a mental breakdown and I don't think I have the adjectives to describe that experience to you.

The last time I had to go to hospital for symptoms caused by drugs I finally saw myself for what I was; the same old girl but without the light, without anything but bags under my eyes, a hospital gown and nowhere near enough money to get home. I thought to myself 'I could die right now'. And because that scared me, I knew there was a spark of me left: a spark of me worth fighting to keep.

I'm still fighting for that spark today, I suppose. Everyday is a fight: Disablist external and internal voices telling me that being ill is failing vs. the truth.

To explain what that truth is I'll have to talk about another diagnosis. After being diagnosed with hypothyroidism, depression, anxiety, and seeking help for my addiction, I stilldidn't self- defineasdisabled.For me to claim that term, we have to talk about 2013. In my final year of university, I was seeking medical help for posterior uveitis and macular edema. I was losing vision rapidly and for the first time in five years I felt I was losing the battle with internalised disablism. It was then that I realised that one person isn't enough to fight disablism. Not even close. We each have our limits and our abilities and I wrote a statement about mine in relation to our Student union elections. This is probably the first time I recognised my limits as a disabled person.

Disability to me is not a special criterion, a measurement of ability, or a term reserved for those who are ill 'enough'. Because the truth is that there is no illness small enough to ignore and no role so important that health can be side-lined. Disability is the absence of abled privilege. I don't have the privilege of being able to control my body weight as others do, of being able to see properly, of being able to write and speak without mistakes, of being able to effectively usemy working memory, of being able to use substances recreationally,ofnotbeing depressed and anxious. The expectation thata person cando allof these things is socially constructed and maintained, and because of this, disability is a physical and political identity.

In the movement and activism against disablism and able normativity I found that self-care and peer support are essential. NUS Disabled Students Officer, Hannah Paterson, offered me support and understanding following me coming out about my condition, and I think that was the first time in a long time I wasn't scared to be seen as weak, because Hannah and other activists find strength in admittinglimits. What followed helped me to do the same. Other disabled activists rallied round to help with the things my disabilities prevented mefrom doing and I think the power of that network is a huge factor in me being here today, relatively unscathed. I need and deserve a network of people who share my rage, fight and principles of self-care.

Before disability I was just someone who couldn't see the PowerPoint, someone too scared to leave the house sometimes, someone whose life was a process of rebuilding, relapsing and ignoring. Before disability I was acting out of fear of 'failing' socially and academically but I was failing myself. Before disability I was losing myself, I was killing myself.

And now that I have claimed the word disabled with all its power, history and support?

Now I know that strength means asking for help.

Now I'm proud to be disabled.

How to be an ally to working class people

5 problems with sex positivity

Although I am a sex positive activist, I don't believe subscribing to any tradition, political perspective or community, uncritically, is a good idea. The problems outlined below are things I've encountered in spaces that aren't explicitly feminist. But they are important, and they do matter.

1. Men dominating conversations on women's sexuality and bodies
I've found that in a spaces that aren't feminist the oppressive power dynamics found in any other place are reitterated and validated in discussions. The discussion is usually male centered, binarist, cissexist, heteronormative, etc. Some men use sex positivity and the discourse of 'preference' as a cloak to excuse their patriarchal generalisations. E.g. 'body hair (on women) is revolting'. Sex positivity should be about challenging patriarchal notions and normative, oppressive ideas about sexuality, and it saddens me that some men are accessing sex positive spaces to do the opposite.

Benjamin Rush, Carl Von Linné, Julien Offray de la Mettrie, Sylvester Graham, Richard Von Kraft-Ebing, John H Kellog, Sigmund Freud, Alfred Kinsey, Claudius Galerius, Samuel Tissoflt- the discourse on human sexuality has been dictated by white men, some making progressive arguments, some scientific and some oppressive, but all men. Most people in the world are not white men. And our sex positive spaces should endevour to not silence those who aren't, otherwise it's just the same old shit, under a different name.

2. Shallow analysis of the roots of sex negativity
Sex is political, just like anything else. Sexual behaviour has been policed, villianised, or encouraged thoughout history depending on the political climate. There's definitely positives in addressing the symptom (the experience of sexual shame and repression) but the discussuon of the cause is important for true progression. Sex positivity in relation to capitalism, sex positivity in relation to disability, to patriarchy, to the nuclear family? These  dialogues are missing. Sex positivity cannot simply be a tool for self validation alone, but for ensuring we can break the the cycle of sexual repression.

3. Pressumptions
I believe a sex positive space should be one in which people aren't subjected to others making tired presumptions about gender, sexuality, or experience of sexual desire. When writing about sex positivity leads to relative strangers (all men) contacting me pressuming that I want to have sex with them, this reinforces the idea that a woman discussing the politics of sex is a 'cert'. No, I don't want a photograph of your sex organs. Thank you. No, talking about sex doesn't automatically mean I experience a high sex drive, or that I want to answer questions about my sexual behaviour. Thank you. No, talking about sex doesn't mean that I'm heterosexual. This dialogue is not another tool to service male pleasure, it's a tool to challenge the assumptions, not reinforce them.

4. Slighlty missing the point
Sex positivity is not about uncritically claiming that all sex is great.
a)Sex is not always positive
b)and it's not essential for everyone.
Many people have a strained relationship with sex, and their own body, they may have sexual triggers or have survived sexual abuse or rape. The sex positive movement cannot make progression if we simply plaster over the fact that sex can be a negative experience and a tool of oppression. We are failing at communicating the true purpose of sex positivity if we exclude people with sexual triggers. It's not about saying 'woohoo, sex is always fabulous' it's about recognising that human sexuality is diverse, complicated and often an emotive topic. It's about saying that there is no 'wrong' way for a person to express their sexuality, or asexuality. We shouldn't be silencing survivors of sexual abuse, we should be shaming institutions that normalise it, we should be discussing consent.

People may choose not to engage in erotic behaviour and still lead rich, fulfilling lives. Sex positivity should not be about interveining to educate people who choose not to have sex, to tell them what they're missing. Sex positivity should not be about forcing people to discuss their own sexual behaviour if they don't want to, or pressuming that those who don't are victims of sexual shame.

5. Body negativity
I cannot count the number of times I've seen or partaken in discussions that transcend into body negativity. Why? Because although it's essential that sex positivity and body positivity are linked, someone forgot to put that on the group email, or the general memo. Fatshaming, thinshaming, disability shaming, normative beauty standards, body policing= not sex positive. Body positivity absolutely has to be a part of this movement because if not, then we're saying 'you only deserve sex positivity if you fit these narrow critera'. Expressions of sexuality are not hierarchical, hopefully most people realise that penetrative sex is not the Golden Chalice of erotic acts? Body types and appearences should also be discussed in a non-judgemental, non-heirarchical manner, too. Otherwise we are  shaming the tool used for the expression of human sexuality, and therefore we are encouraging sexual shame.

Conclusion? My sex positivity will be feminist, intersectional, self-critical, LGBTQ inclusive, disability positive, and radical, or it will be bullshit.

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5 Things That Aren't Racism

Ok, let me preface this post by saying that as a mixed race person who is percieved to be wholly white- I experience a lot of white privilege. Racism I've experienced has mainly been verbal abuse and it most certainly hasn't been often. You could say I'm lucky that I don't have to worry about experiencing racism. You could say I'm unlucky because I exist in a society that has racism (and other oppression) at all. Because I experience white privilege I usually keep my mouth shut on what constitutes the oppression of people of colour (PoC) because I'm not experiencing 99% of it.
But this post is to society at large, and it's about what isn't racism, what shouldn't be compared to racism and why and as someone who has experienced racism, I feel entitled to outline these points.

5 Things that aren't racism

1. A white person taking the piss out of Justin Bieber for being American

Whilst you might really like Justin Bieber and want to defend his honour...don't try and change the meaning of the word 'race'. The dictionary definition may be 'classes of people' but you know that 'racism' relates to oppression on the basis of ethnicity. Just like we understand that class usually relates to socio-economic and cultural background. Xenophobia is different to racism. And to be honest xenophobia has a more heartbreaking effect on someone trying to emigrate from another country to ours than it has on Justin Bieber. Some wealthy celebrity goes on living his life, those who experience oppression get their lives shaped for them by racism and xenophobia. Put down the strawman argument and step away from the false premise. (Sidenote- someone actually argued this exact point with me, twice.)

2. When a PoC is mean to you
(Sidenote- I'm paraphrasing from tumblr here)
What racism is-
The continued devestation of counties with bombs and wars, the historic and unrelenting oppression of PoC, the continued under employment, bigotry and disadvantage experienced by PoC.
What white people think racism is-
A black girl in school was mean to me.

3. Homophobia
I've spoken previously about how uncomfortable I am with white LGBT people conflating homophobia with racism. Not because I think one is worse, but because a white LGBT person only experiences one of these things and doesn't have the experience to talk on the other with authority.
The homophobic response to same sex marriage is not the same as segregation.
STAAHP.

4. When Diane Abbott points out facts
(Sidenote- I'm not promoting or condoning Abbott's politics or Labour) So Abbott once tweeted 'White people love playing 'divide and rule' We should not play their game.' The media was alight with people talking about 'reverse racism' and 'racism against white people' and to that I say- LOOOL.

Another time, Abbott stated that the 'British invented racism'. So white people get all upset because Diane Abbott is making generalisations about them as a group. She's making out that someone who has a privileged position due to being white (in a country that had, lets say, a little hand in imperialism and the slave trade, which created white supremacy) still have imperialist values.

Well guess what? She's right. And as a PoC in a country that still has racist values she cannot possibley oppress privileged white people by pointing out facts. If her comments offend you more than this then you're a victim of your own privileged ego.

5. Someone calling all men 'bastards'
Let's compare two situations
Situation a- someone who isn't a man says 'Oh, Jeff really pissed me off today, why are all men such bastards?'
Outcome- Jeff may be upset if he hears, but he maintains his male privilege anyway.

Situation b- a white person uses a racist slur in a room full of white people.
Outcome- the historical oppression, enslavement and marginalisation of PoC began the use of racist words, the continued use of them maintains a system that sees PoC as less than (linguistics, innit). Language stregnthens and maintains value systems and the other white people in the room see that this word is 'acceptable' in this context.
Hey, guess what? A person generalising about men isn't the same as the structural oppression of generations of people, and the maintainance of that through saying words that were tools of that oppression. Your hurt feelings don't license you to compare or conflate someone being mean to the oppression of a group you don't define into. Get over yourself.